Halloween Candy

Hey Guys!

Halloween is approaching so I wanted to do a blog in regards to Halloween candy. Boston obviously will not be eating any of this fun stuff this year, but I knew y’alls kiddos might, so I wanted to have this available for you. I will print this and take this with us when we trick-or-treat so if he wants to eat anything right away, I know what to grab out of his bucket. I also listed not phe friendly items just in case your kid accidentally eats some of the “no-no” items.

Phe-riendly Candy (Phe free Candy & Low phe Candy)

Sour patch kids                                                                                            0 mg of phe

Laffy Taffy                                                                                                     0 mg of phe

Sweet Tarts                                                                                                   0 mg of phe

Gobstopper                                                                                                   0 mg of phe

Ring Pop                                                                                                         0 mg of phe

Mike & Ike                                                                                                     0 mg of phe

Sour Punch Straws                                                                                      0 mg of phe

Dum Dums                                                                                                    0 mg of phe

Pez                                                                                                                    0 mg of phe

Spree (Hard Candy)                                                                                     0 mg of phe

Jolly Rancher (Hard Candy)                                                                      0 mg of phe

Nerds                                                                                                               0 mg of phe

Smarties                                                                                                         0 mg of phe

Dots                                                                                                                  0 mg of phe

Fruit Gushers                                                                             1 packet = 5 mg of phe

Peeps                                                                                               1 piece = 4 mg of phe

Skittles                                                                 1 full size pkg. (61 g) = 9 mg of phe

Starburst                                                             1 full size pkg. (59 g) = 8 mg of phe

Jelly Beans                                                                                 14 Pieces = 5 mg of phe

Tootsie roll (midgee)                                                      1 midgee roll = 2 mg of phe

Tootsie roll (small size)                                                                 1 roll = 3 mg of phe

Twizzler (Bites)                                                                      Bites pkg. = 4 mg of phe

Spree (Chewy)                                                                             8 pieces = 6 mg of phe

Candy Corn                                                                                  13 pieces = 3 mg of phe

Not Phe-riendly Candy

Jolly rancher (Gummies)                                                       9 pieces = 48 mg of phe

Twizzler                                                                                      1 licorice = 19 mg of phe

Milk Duds                                                                                   13 pieces = 45 mg of phe

Sugar Babies (Regular size box)                                                  1 box= 21 mg of phe

Sugar Babies (Fun size)                                                                 1 box = 12 mg of phe

Almond Joy (Fun Size)                                                                   1 bar = 42 mg of phe

Whoppers                                                                              1 box (77g)= 125 mg of phe

Hershey’s (Miniature Milk Chocolate)                                  1 pkg. = 40 mg of phe

Hershey’s (Kiss)                                                                              1 kiss = 16 mg of phe

Butterfinger (Regular Size)                                                         1 bar = 206 mg of phe

Butterfinger (Fun Size)                                                                   1 bar = 73 mg of phe

M&Ms                                                                                           10 pieces = 22 mg of phe

Twix                                                                                                       1 bar = 66 mg of phe

Three Musketeers (Fun size)                                                         1 bar = 29 mg of phe

Three Musketeers (Regular size)                                                1 bar = 106 mg of phe

Snickers (Fun Size)                                                                            1 bar = 82 mg of phe

Snickers (Regular Size)                                                                   1 bar = 241 mg of phe

Reese’s (Miniature)                                                                        1 piece = 43 mg of phe

Reese’s (Regular Cup)                                                                  1 piece = 104 mg of phe

Kit Kat                                                                                                1 piece = 135 mg of phe

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We hope y’all have an amazing Halloween!

For I Know The Plans I Have For You

“You can make plans, but the Lords purpose will prevail.” Proverbs 19:21

I’m a planner, a little OCD, and total Type A personality.

It’s a blessing and a curse.

When I was pregnant with Boston, I wanted to prepare myself for everything. I bought all kinds of medicine, books, had all the newest and greatest technology, I was overly prepared for this baby.

But then he arrived and everything wasn’t peachy.

Everything wasn’t perfect like I imagined.

He suffered a rectal perforation at birth from a rectal thermometer. He was then rushed for emergency surgery at 23 hrs. old. He then had a colostomy bag for 2 months. AND just when I thought we were going home from that horrible ordeal we got a call about Boston’s PKU test being abnormal.

Angry is an understatement.

Faith shaken is an understatement.

Emotionally unstable is an understatement.

I thought to myself how could all of this happen to us when all of my friends are having their babies and taking them home?

I had planned to bring my baby home in about 3 days.

I had planned to have a perfectly healthy baby with no visible scar.

I had planned to have a baby that could eat whatever he wanted.

SO when my plan in my mind wasn’t what God had in store for me. I struggled.

 

Everyday I ate something that I knew Boston couldn’t eat and I felt helpless.

Heartbroken.

Boston’s PKU made me not want to eat, I felt guilty eating things I knew he never could.

Everyday my husband came home from work and I was crying about how unfair this was to be happening to us…I had changed a colostomy bag twice because poop was leaking all over the place. I was afraid to leave the house with him because it would be a poop frenzy. Then I was struggling with his PKU diagnosis. That was probably the hardest.

The best thing I ever did was finding other PKU moms.

They gave me hope.

They gave me someone I could relate to.

That was God.

Boston is such a joy to be around.

Boston literally lights up the room with his smile and demeanor.

That’s God.

The outpouring of love and support from our friends and family.

That was God.

So maybe life wasn’t what I planned.

It’s SO MUCH better than I ever imagined.

That doesn’t mean for all you newly diagnosed moms that I am minimizing what you are going through because it’s hard and still is hard at times.

I just want to offer you hope and faith like other moms did for me.

Our babies are special and God handpicked us.

He called the equipped and he entrusted us to care for these PKU babes.

 

When I think of all the alternatives with Boston I feel really blessed. We could have brought him home from the hospital without knowing he had a rectal perforation and he would have died within 48 hrs. from sepsis.

If we had denied the newborn screening test we would have never known Boston had PKU and how to manage his diet and he would have suffered irreversible brain damage.

 

Take the time to witness Gods miraculous blessings, because while you are busy making plans you may miss your purpose; you might miss your calling.

 

“For I know the plans I have for you; plans to prosper you and not to harm you, plans to give you a hope and a future.” Jeremiah 29:11

 

#newbornscreeningsaveslives

 

 

 

 

Boston’s 1st Birthday Cake

Boston’s first birthday was a few weekends ago and it was such a great day celebrating this precious boy! A lot of the people who surrounded us on this special day were the people who guided, provided, and loved us through this year.

We had a pretty rough year, aside from Boston having PKU; he also had a rectal perforation at birth, and C.Diff. Whew! Overwhelming. I can honestly say he’s had a smile on his face through almost all of it; he’s a real trooper.

So I decided to throw an extravagant first birthday, I just felt like he deserved to be celebrated! So with that celebration came a BIRTHDAY CAKE! I wanted him to feel like every other kid on his or her birthday and give him a birthday smash cake. So I made the Cook for Love (yellow cake recipe.) I must say this cake is sooo DELICIOUS! Of course he didn’t really eat it…but hey “A” for effort. I definitely want this for my birthday this year!

Here is the recipe:

 

Yellow Cake

 Author: Brenda Winiarski

Nutrition Information

  • Yield: 24
  • Serving size: 1 cupcake
  • Phe Per Serving: 34 mg
  • Calories Per Serving: 160 kcal
  • Phe Per Recipe: 821 mg
  • Calories Per Recipe: 3840 kcal

 Prep time:  30 mins

Cook time:  30 mins

Total time:  1 hour

Print

This cake is worth the effort. It took me over four years to get results that everyone in the family enjoys. I have even had requests at gatherings for the recipe – no one would know that it was made for a restricted diet – it is rich and buttery – better than Betty Crocker any day. If making cupcakes, they freeze beautifully so you are set for those unexpected parties at school.

Ingredients

  • 325 gm (2½ cups) CFL baking mix [195 mg]
  • 15 gm (1 tablespoon) baking powder [0 mg]
  • 3 gm (1/2 teaspoon) salt [0 mg]
  • 50 gm (1/2 small box) jell-o instant pudding, vanilla flavored [0 mg]
  • 12 tablespoons (1½ sticks) unsalted butter, softened and cut into 12 pieces [72 mg]
  • 1 cup granulated sugar [0 mg]
  • 57 gm mixed egg (1 large), room temperature [388 mg]
  • 17 gm (1 large yolk) egg yolk, room temperature [116 mg]
  • 30 gm (2 tablespoons) mayo [23 mg]
  • 2 teaspoons vanilla extract [0 mg]
  • 300 gm (1¼ cup) rice milk, room temperature [27 mg]

Instructions

  1. Grease two 9 inch baking pans with lots of butter and line with parchment paper that has also been greased. Preheat oven to 350 degrees.
  2. In a medium sized bowl, sift baking mix, baking powder, salt and pudding mix three times (or use a triple sifter once). Set aside.
  3. Cut butter into 1 inch pieces and put them in a large bowl. Soften with a mixer on low speed. Increase the speed to medium high and cream until light in color, about 1 ½ to 2 minutes. While still mixing, add sugar 1 tablespoon at a time, taking about 4 minutes to blend it well.
  4. Add egg yolk, blend for 30 seconds. Scrape bowl.
  5. Add mayo, blend for 30 seconds.
  6. Add mixed egg, again blending for 30 seconds. Add vanilla.
  7. With the mixer on low, add about half of the dry ingredients. When incorporated, add half of the rice milk. Then half of what is remaining of the dry, then the rest of the rice milk, ending with the remaining dry. In other words alternate between the dry and wet, starting and ending with the dry mix. Mix JUST until incorporated after each addition. Scrape the sides of the bowl as necessary.

Bake at 350 degrees, for 30-35 minutes for 9-inch cake, or until it begins to come away from the sides of the pan. Stick toothpick into the middle of the cake, it should come out clean. Bake for 18-20 minutes for cupcakes.

This was found at cookforlove.org  (Be sure to register to find lots of great recipes!)

Cook for Love also has a facebook page so make sure to connect with them there. It’s such a great way to share recipes and all things PKU.

Here is a picture of all the ingredients I used:

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I was blessed to have my sisters in town; my middle sister, who is a great cook, helped me make this delicious cake for Boston.

Hope y’all love this cake as much as I do!

Also here are some pics from his BIG DAY!

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